The Wide World- a Post Super Glenn Debrief
It’s been three weeks since Liam was discharged post Super Glenn, two weeks later than initially projected. Six weeks before that, Logan and I were sitting helplessly in PCICU while cardiologists and surgeons scratched their heads unsure of why the lauded Glenn Procedure was failing our 4 month old son. I have joked, in my classically biting way, that I will need years of therapy for those 8 days alone, but the joke’s on my insurance provider because it’s true. Of all the things Liam has had to go through, this was the most harrowing yet. This truth is particularly galling given how this surgery was billed: easy procedure, fast recovery. A quality of life game-changer. None of those things happened for us. Maybe the last one, but not in the traditional sense. Liam is pinker and more vibrant for sure, but the Super Glenn continues on the shunt dependency that made the Norwood tricky. The Super Glenn puts Liam in a grey area of pseudo-Interstage, or purgatory, given the season....